Pediatric Overactive Sphincter and Botox injections

Pediatric Overactive Sphincter and Botox injections

I reviewed these posts recently and I have really missed sharing a component of Thijs's journey that might be helpful to other families. I'm going to try to tell these stories, though the details may be a little out of order, simply because sometimes, a mother must walk through hospitals in a careful fog, merely [...]

Tyce is 2.

Tyce is 2.

He's inquisitive, into everything, outgoing, determined, endearing and finally learning some words. The best part? He's healthy. I haven't posted about Hirschsprungs in a long time, largely because he began to thrive and we were mercifully able to allow it to sink into the background of living. We have experienced another bout with enterocolitis in December 2015 (when [...]

Enterocolitis after Hirschsprungs Pull-Through Surgery

Enterocolitis after Hirschsprungs Pull-Through Surgery

As I was organizing my Hirschsprungs entries recently, I realized that my posts about Tyce's Hirschsprungs journey continually receive visitors. My heart goes out to those of you who find these entries as the result of a Google search, working to educate yourself about Hirschsprungs, maybe for your child? Recently I re-googled the disease, aware [...]

The Night Before

The Night Before

Call?  Don't call? They said they're on it.  But what if he falls through the cracks? A week of irrigating his bowels, morning and night, to help his little plumbing finish the job.   They call--results are in. Can we do surgery tomorrow? Ironically, instincts all week were that it would be tomorrow. So I'm [...]