After Surgery: Recovery Day 1

5:25am
After Tyce spending maybe 6-8 hours in his hospital bed, sleeping (sometimes peacefully, sometimes fretfully), Nick and I were able to grab a few hours, though we are certainly far from rested.  We have not yet been able to get a hospital room upstairs, so we are sleeping on these blue pleather recliners that require constant muscle attention to stay reclined.  If you curl up on your side, it’s a little better, but Nick has struggled to get comfortable.  Tyce just settled from a good “I’m over this” cry, so in calming him, we were lifted from that weird sleep…zone?…fog?…    Nick is holding Tyce and his breathing just changed, so he’s probably sleeping again, which I am relieved.

The photo above is the view out our window right now.  Sometimes I see medical people, clutching their coffees and bent against the brutally cold wind, coming and going. Gosh I love these people–what extraordinary, important work they do.

He has been hooked to wires since surgery now and I hate them.  I wonder about parents who spend much longer amounts of time gingerly positioning each encounter. Careful, is it tugging on his IV? Did the pulse/ox come off his foot again?  They have his little arm in a sort of split to keep everything in place–which he hates.  I fight this odd reflex to rip all this paraphernalia from him so we can have a proper cuddle.  And then you catch this sneaky little thought creeping into your mind, that these wires are what sustains his life and comfort. You let them gain mastery over you, even fearing that one kink might set off an emergency situation.

I rebelled properly against that mindset a few minutes ago.  And while I have no intention on removing these beautiful aids from Tyce until he and the doctors feel comfortable, I again turned my heart aright to its True Source.  Our loving Healer–Tyce’s Perfect Designer–and quite simply–Daddy–IS WHO HE HAS ALWAYS BEEN. Nick just snored–PTL.  Erin Brookens reminded me that He’s not only the maker of Tyce, but also the maker of the doctors, the source of their skill.

So the wires.  I feel like I’m not being very coherent this morning–sorry about that. I hate them, I temporarily accept them, and I put them in their proper place–aids used of the skilled providers who were sent by the Lord to care for this boy.

In other news, they have these ginormous cookies in the Rotunda that set my heart a-flutter.  You know, small victories…

A few photos I didn’t get a chance to post yesterday:

Moments after surgery--waking up from anesthesia
Moments after surgery–waking up from anesthesia
Little boy in big bed... Big boy in a little bed...
Little boy in big bed…
Big boy in a little bed…

 

2:45pm
Steph came to see us this morning.  That was nice, as she is very comfortable in medical environments and doesn’t feel the awkward need to fill the empty quiet.  She handled Tyce very confidently amidst his wires and snuggled him happily for some time. She was a bright spot in our morning.

Just a few moments ago, and in maybe the best development so far, we finally were moved out of the surgical recovery area to a room in Pediatric Acute Care on the 3rd floor.  We have so much more room to move around, our own bathroom and are finally able to shower.  They needed to find us a room by the end of the day because the surgical floor closes on the weekends; we are sitting here feeling like we moved into the medical Marriott. Thank you, Father.  We don’t know how long we’ll still be here, and this room makes the prospect much easier to embrace.

And if you’re counting dirty diapers (I am), we have reached 5.

IMG_0717_newroom

4:45pm

Y’all, I’m feeding my son.
Hallelujah–we thought we might have to wait til tomorrow and I’ve been dreading that for Tyce’s sake.
Now is the real test: is his body ready?
We believe it is.

On this picture you can see the splint-type brace they have under his arm to stabilize his IV. We’re so ready to have that removed.  The doctor said after 3 successful feedings, his IV can be removed.

IMG_0724 body

Very good advice. Love that the nurse was so mindful to post this.

 

 

WEEK ONE: Fruits and Vegetables

Fruit Vegetables

Several people have asked about what Nick and I are doing; we aren’t really following a specific “program” or “schedule”, other than what we’ve created for ourselves based on things we’ve done in the past.

HISTORY

A while ago, we stumbled upon Fat Sick & Nearly Dead on Netflix, and immediately launched into a 15-Day Reboot, following the guidelines here.  We did well with it and felt terrific, partnering with some dear friends; but we found ourselves maxed out after 13 days. For several reasons:

  1. It was freaking expensive.  I have heard all the arguments for investing in health now, or paying for illness later, and largely, I agree with the premise.  I just found the list of ingredients to be so financially demanding, and unnecessarily so.  One juice, fennel and pear served over ice, was surprisingly delicious–and stunningly expensive.  I consider myself to be fairly balanced when financial conversations meet reality and value, but repeatedly I found myself stunned.  In 13 days, we spent over $300 for two people (not including feeding our children).
  2. Limits.  I just know myself, and it’s fair to say I shouldn’t have embarked on such a long reboot if I found myself disgruntled with strict limits.  During our reboot, we ate some recipes that shouldn’t have been considered recipes.  I mean, really, boiling an assortment of green vegetables in a water broth isn’t cooking.  After about day 10, I was really craving nutritional things that weren’t permitted in the program, such as nuts, beans, and eggs.  Knowing they weren’t allowed simply made this worse, and harder to overcome.
  3. The Yucky Factor.  I’m a firm believer that vegetables and fruits can be prepared in nutritious ways that are absolutely delicious.  As I alluded to above, some of the recipes in the reboot were OK, others were really difficult to swallow.

THE BREAKING POINT

All those factors aside, I couldn’t deny that I felt terrific.  My mind was super clear and I had so much more energy.  I lost about ten pounds during that time, weight that actually stayed off until my habits digressed (at which time I made up for it, plus some.)

The truth is that I don’t really obsess about my weight.  I’m much more interested in my health.  Weight is such a fickle number, especially in women, and a great way for perfectly lovely people to negatively value themselves.  I did notice the scales creeping north, but I honestly didn’t care.  Until I started feeling icky.  I had no energy at all, and I didn’t feel good in any of my clothes.  My complexion was sallow and I was breaking out more often.

Then there was a day when I reflected over my week and realized my intake was nearly entirely of empty carbs, oil and sugar.  I noticed I was relentlessly craving processed food and salt.  It took me two weeks to come to a readiness–no amount of guilting yourself into a change will bring about true readiness.  So I just let things digress to a place that I became ready.  That was Saturday, January 18–so on January 19, we started.

WHAT WE CHANGED

I knew that our earlier reboot was really successful in resetting how we felt, so we agreed it was a good route to take, with some edits.  We had also come to an interest in pursuing a more paleo lifestyle, but without a hard reboot, those health changes were never going to stick–and we knew it.

So we drew up a plan:

  • One week, fruits and vegetables only–more vegetables than fruit as possible.  Less or no juicing this time, and more smoothies using our Ninja.  This way there was much less waste and the produce we used stretched much further and were much more filling.  Also, salads, and hot dishes however creative I could be.
  • Lots of water
  • No caffeine (though Nick has since decided to cancel this part on his efforts.  I am continuing, as I suspect it has something to do with my constant headaches and energy imbalance).

Our goal is to consider our intake with more thoughtfulness, and less stringent rules.  My sister Amanda reminded me that we rarely stick with “programs” that are too limiting or restrictive (and she’s right, I think).

Next week, our plan is to reintroduce nuts, eggs and beans.

COCAINE?!

I confided in a friend at church, Alycia, that we were doing this.  Because of health challenges, she has been gluten, dairy and sugar free for a year.  She shared with me that because of the addictive natures of gluten and casein (in dairy), not to mention sugar, that the cleansing from it was similar to what a cocaine addict experiences in detox.

After day one, I believed her.  I had a constant headache–I was shaky and grumpy, with a fuzzy mind that simply would not connect.

I made a salad for lunch on day two, using a yummy vinaigrette I’d found and topping it with avocado.  It was good, but I still fought my gag reflex—twice.  But I finished it and was thankful to put the plate in the dishwasher and walk away.

For dinner, I had a win!  I made a mirepoix in my soup pot, adding a little olive oil while the onions caramelized.  I added handfuls of carrots, celery and red-skinned potatoes (yes, Mom, I left the peel on) and salt and left it simmer in some chicken broth, eventually adding a quart of my home-canned chopped tomatoes and some frozen organic green beans.  It simmered all day; I added mushrooms in the last hour, along with cumin, oregano and pepper.  I wanted so much to add lentils or beans, but was able to hold off because I know I can include them next week.  It was soothing and so delicious that Nick and I each had two bowlfuls and it’s on tap for lunch.  The oil, broth, and potatoes would have been no-nos before; this time, we’re focusing less on the rules and more on the new habits.

We’ve had totally yummy smoothies, as well—my best one so far was banana, peach, lime, carrot, two huge handfuls of greens and almond milk (I don’t know why almond milk is ok but nuts aren’t, but since I make the rules, this is how it is. 🙂 .  I also love cucumber and celery in my smoothies.

We are on Day Three today.  I still have a remnant of a headache that comes and goes, but the brain seems to be a little more clear today.  And I’m starting to feel good–lean and strong.  And since that was the goal, it’s fuel to continue…

Diane